Smile Through It II: The Next Chapter

Chasing dreams, because I can

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Just the details

Posted by Oli on Monday 3rd December, 2007

Hi guys, this has got to be really brief as I’m so tired this evening. I promise to write a full rundown of today’s goings on tomorrow.

Oli’s had a good day overall, docs are pleased, one drain to come out tomorrow leaving two behind, wound from Friday is healing well (and looks amazingly teeny).

There was discussion this morning of Oli going back to theatre to get the left side of the chest cavity worked on.  Oli wasn’t hugely in favour of this plan, understandably, but the chest surgeon doc lady came to see him this afternoon and after seeing that only a little chyle (my new word for the day, it is to be used in place of the word leaky fluid)  was now draining said that she may not need to do any more work but will keep an eye on the output over the next couple of days.  Oli is very happy with that news, fingers crossed for no surgery.

We left him fairly happy this evening but overwhelmingly tired, I hope he sleeps well.

More detail tomorrow, I promise x

As a side note, when looking for the spelling of my new word ‘chyle’ I came across the most amazing word I think I’ve ever seen – Lymphangioleiomyomatosis – I love it!  I think it may be a place in Wales, if not, it should be.  Night night x

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16 Responses to “Just the details”

  1. sarah said

    ah good news. chyle is a fab word.

    Justine laymond has Lymphangioleiomyomatosis (LAM) http://www.justinelaymond.com/ she had a double lung transplant in 2006 at harefield. seems so so long ago now.

    i love long words and trying to pronounce them. much to peters amusement. [blush]

  2. Bev and Lucy Pearson said

    Hope that the chyle reduces nicely – does that mean that Oli has to have a low fat diet at the moment? (Remember Lucy having this problem after her heart surgery as a baby).

    Glad that things are ticking along nicely.

  3. Emily said

    Loving the word of the day. Hopefully you can give us a new one to learn each blog 😉 xx

  4. Audrey Eade said

    Keeping my fingers crossed for no more surgery too.

  5. Frizzymum said

    Hope both you and Oli have had a good night’s sleep. Many thanks for the update and much love and best wishes for continuing positive news. Xx

  6. DonnaW73 said

    Thanks for keeping us updated, i dont know Oli but am rooting for him all the way. I hope he continues to improve and he doesnt have to go back to theatre. Donna x

  7. Linda & Ian Rowe said

    Pleased to hear of Oli’s progress. Hoping the next theatre appearance is only on stage somewhere. “Out damn chyle” (apologies WS!). Lots of love. xxxx

  8. Sally & Saray said

    Looking forward to seeing you WALKING without your friend O2 just for a visit. Keep well Oli, We are thinking of you.
    Lots of love… Your nurses at the Treatment Centre 🙂

  9. Alison said

    You could call it Chylie Minogue!

  10. Aimee said

    you really are amazing Oli keep on fighting and smiling through it!

  11. Jayne said

    Great posts, great about Oli.

    Thinking of him every day.

    xxx

  12. Hello ~

    I came across your site because I have Lymphangioleiomyomatosis (LAM). It is a spectacular word, isn’t it!

    I’m a 41-year-old woman, on oxygen, living a remarkable life, but will not be going for a lung transplant because I’m allergic to all pain meds. No surgery without pain meds. : )

    My daughter recently made a short movie about how I live with LAM that I thought you might enjoy. The link is:
    http://www.maureenandzelle.com/katemccarthylamvideo.htm.

    Best of luck to you!

    Maureen McCarthy
    maureen@engagingthesoulatwork.com
    North Carolina, USA

  13. Susan Hatton said

    Hello K – whenever any member of your Mum’s Tuesday evening group meet the first question is always “How is Oli”. I follow your blog but it is always good to hear first hand. You know, I am sure, that our thoughts and prayers are with you both, with your families and with the family of the donor. We can only watch, hope and pray……………

    Susan, Pat, Barbara, Dianne

  14. Sparkley said

    😀 xxx

  15. Clair Hemmington said

    Hi, I have Lymphangioleiomyomatosis (LAM) and am on the transplant list at the harefield for a double lung transplant, found Oli’s site through Emily’s and read them both with hope. Wishing you comfortable and speedy recovery Oli and may you soon be able to do all the things you have been missing. x

  16. lorraine and steven said

    we are feeling ever so humble – what you have achieved within three weeks is truly amazing and we are rooting for you and willing you to the point when you can come home. lol Grace and Samuel xxxx

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