Smile Through It II: The Next Chapter

Chasing dreams, because I can

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Keeping it brief

Posted by Oli on Friday 23rd November, 2007

Hi guys, gonna be a short one today as am really tired this eve and my brain is just about to close down for the day.

Oli is good.  All his levels are good, CO2 is a bit high but neve is doing good stuff at keeping levels in check.

It seems like it’s going to take a couple of weeks for brain to make friends with the new lungs, a few messages are getting through from brain to lungs and vice versa but they’re not really best buddies yet.  We’ve been reliably informed that a couple of weeks will make them firm friends.

Oli’s very tired, drugs and lack of sleep are making an already tough job even tougher – however, as we’ve already seen, he is a super trooper and is toughing it out.  I think he may see the steady progress as a bit of a backwards step which it most certainly isn’t.  I know that not being ‘with it’ is frustrating Oli but we are happy in that these are the early days when Oli is so full of these drugs which make him woozy and play with his mind that actually, when he is up and running, Oli probably won’t remember anyway.

Night night everyone, sleep tight x

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7 Responses to “Keeping it brief”

  1. Sparkley said

    🙂

  2. Emmie said

    Hope both you and Oli have a good night’s sleep. It must be hard for him to be struggling after appearing to sail through so well during the first couple of days. His brain and new lungs have a lifetime to make friends, I’m sure they will learn to love each other very soon! xxxx

  3. Emily said

    hey sweetie

    You’re absolutely right, I remember very little of those hazy first days (or weeks in my case;)) where they were fiddling with various bits trying to ease the new lungs in…knowing his patience (or lack of) he will get very frustrated but that’s a good thing as it will make him push himself when the physios get started! Much love hon xx

  4. Claire said

    I am a friend of Emily’s and can remember this part of her recovery so clearly. Trying to get the brain to understand that it is ok to breath normally and that breathing is not meant to be a huge effort and you wont always feel your lungs working but they are!! Hard to watch someone go through this bit but when the brain and lungs learn to love each other it makes it all the more special!
    Keep smiling
    x

  5. Ali A said

    Thanks K for keeping us up to speed with Oli’s progress. i’m sure he just want’s to get up and be part of the normal world ASAP but tell him he must rest and get his strength back to keep claimbing that maintain.
    Thinking of you all and keeping oli in my thought’s
    sending lots of love to you all
    Ali from the CF forum
    xxxxxxxx

  6. Sending Oli lots of hugs, hope his brain and lungs make friends very soon and that it’s the start of a lifelong friendship!

    Becky, Seren & Dylan xxx

  7. uncle canada said

    Well done Oli, I am sure all will be well Emily has told me about you and I am sure you will follow in her footsteps although you will have trouble in keeping up, I am her uncle from canada.Time will show you any thing is now possible good luck too you and your family. Uncle Canada

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